TY - JOUR
T1 - The Australian LINEAGE Study
T2 - advancing and implementing international guidance on genomic data within local governance frameworks
AU - Lysaght, Tamra
AU - Ankeny, Rachel
AU - Brown, Alex
AU - McWhirter, Rebekah
AU - Nicol, Dianne
AU - Otlowski, Margaret
AU - Richards, Bernadette
AU - Newson, Ainsley J.
PY - 2025/12
Y1 - 2025/12
N2 - The importance of generating and sharing human genomic data for human health is widely recognised. Whilst several international high-level frameworks provide guidance, local governance challenges and concerns of previously under-represented populations mean that the full potential of genomic data sharing remains unrealised. This commentary introduces the LINEAGE study, an Australian research project that is building an empirically-informed and normatively robust governance framework for the generation and sharing of genomic data.
AB - The importance of generating and sharing human genomic data for human health is widely recognised. Whilst several international high-level frameworks provide guidance, local governance challenges and concerns of previously under-represented populations mean that the full potential of genomic data sharing remains unrealised. This commentary introduces the LINEAGE study, an Australian research project that is building an empirically-informed and normatively robust governance framework for the generation and sharing of genomic data.
U2 - 10.1038/s41525-025-00492-6
DO - 10.1038/s41525-025-00492-6
M3 - Comment/Letter to the editor
AN - SCOPUS:105004791482
SN - 2056-7944
VL - 10
JO - npj Genomic Medicine
JF - npj Genomic Medicine
IS - 1
M1 - 34
ER -
