Priority-setting and feasibility of health information exchange for primary care patients with intellectual disabilities: A modified Delphi study

Mathilde Mastebroek*, Jenneken Naaldenberg, Hilde Tobi, Henny M.J. van Schrojenstein Lantman-de Valk, Antoine L.M. Lagro-Janssen, Geraline L. Leusink

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

2 Citations (Scopus)

Abstract

Objective: Accurate health information exchange (HIE) is fragile in healthcare for patients with intellectual disabilities (ID), threatening the health outcomes for this patient group. In conjunction with a group of experts, we aimed to identify the principal actions and organisational factors facilitating HIE for primary care patients with ID and to assess their perceived feasibility in daily practice. Methods: We conducted a two-round modified Delphi study with Dutch GPs (n = 22), support workers (n = 18) and ID physicians (n = 20). In an extensive set of 61 items covering actions and organisational factors, experts ranked items in order of importance and rated their feasibility. Results: Agreement was reached on the importance of 22 actions and eight organisational factors, of which 82% were deemed (very) feasible in daily practice. Experts stressed the importance of listed actions and factors being implemented simultaneously and remarked that further priority should be based on contextual demands. Conclusion and practice implications: This study indicates the principal actions and organisational factors for HIE regarding primary care patients with ID. The set can be used as a practical guide to optimise inter-professional cooperation and arrange the distribution of HIE roles and responsibilities in relation to this patient group.
Original languageEnglish
Pages (from-to)1842-1851
JournalPatient Education and Counseling
Volume100
Issue number10
DOIs
Publication statusPublished - 2017

Keywords

  • Continuity of patient care
  • Delphi study
  • Health information exchange
  • Intellectual disabilities
  • Inter-professional cooperation
  • Quality of healthcare

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    Mastebroek, M., Naaldenberg, J., Tobi, H., van Schrojenstein Lantman-de Valk, H. M. J., Lagro-Janssen, A. L. M., & Leusink, G. L. (2017). Priority-setting and feasibility of health information exchange for primary care patients with intellectual disabilities: A modified Delphi study. Patient Education and Counseling, 100(10), 1842-1851. https://doi.org/10.1016/j.pec.2017.04.010