Gluten, pills and talk : assessing emergent technologies from a patients'perspective

M. Veen

Research output: Thesisinternal PhD, WU

Abstract

How can research in the area of celiac disease take patients into account? Celiac disease is an intolerance for gluten, for which a lifelong gluten-free diet is the only treatment currently available. The aim of this thesis is to gain insight into the everyday life of patients, so as to better align genomics research with their specific needs and wants. We study patients’ conversations in various settings: with each other on Internet forums, with family members during mealtime conversations, and with scientists during discussions about research findings. In our analysis we focus not so much on the content of the conversations, but on what people do with their talk. We show, for instance, that patients treat the diet as a collective phenomenon rater than an individual matter; that incidental deviations from the diet are not treated as inconsistent with the diet, but as a part of it; and that taste, rather than the health aspect of food, is used to maintain the diet.
Original languageEnglish
QualificationDoctor of Philosophy
Awarding Institution
  • Wageningen University
Supervisors/Advisors
  • Gremmen, Bart, Promotor
  • van Woerkum, Cees, Promotor
  • te Molder, Hedwig, Co-promotor
Award date18 May 2011
Place of Publication[S.l.]
Publisher
Print ISBNs9789085858232
Publication statusPublished - 2011

Fingerprint

Glutens
Diet
Technology
Celiac Disease
Research
Gluten-Free Diet
Genomics
Internet
Meals
Food
Health
Therapeutics

Keywords

  • digestive system diseases
  • disease prevention
  • technology
  • innovations
  • assessment
  • technology assessment
  • patients
  • gluten free diets
  • internet
  • on line
  • communication
  • psychology

Cite this

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title = "Gluten, pills and talk : assessing emergent technologies from a patients'perspective",
abstract = "How can research in the area of celiac disease take patients into account? Celiac disease is an intolerance for gluten, for which a lifelong gluten-free diet is the only treatment currently available. The aim of this thesis is to gain insight into the everyday life of patients, so as to better align genomics research with their specific needs and wants. We study patients’ conversations in various settings: with each other on Internet forums, with family members during mealtime conversations, and with scientists during discussions about research findings. In our analysis we focus not so much on the content of the conversations, but on what people do with their talk. We show, for instance, that patients treat the diet as a collective phenomenon rater than an individual matter; that incidental deviations from the diet are not treated as inconsistent with the diet, but as a part of it; and that taste, rather than the health aspect of food, is used to maintain the diet.",
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author = "M. Veen",
note = "WU thesis 5004",
year = "2011",
language = "English",
isbn = "9789085858232",
publisher = "S.n.",
school = "Wageningen University",

}

Veen, M 2011, 'Gluten, pills and talk : assessing emergent technologies from a patients'perspective', Doctor of Philosophy, Wageningen University, [S.l.].

Gluten, pills and talk : assessing emergent technologies from a patients'perspective. / Veen, M.

[S.l.] : S.n., 2011. 195 p.

Research output: Thesisinternal PhD, WU

TY - THES

T1 - Gluten, pills and talk : assessing emergent technologies from a patients'perspective

AU - Veen, M.

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AB - How can research in the area of celiac disease take patients into account? Celiac disease is an intolerance for gluten, for which a lifelong gluten-free diet is the only treatment currently available. The aim of this thesis is to gain insight into the everyday life of patients, so as to better align genomics research with their specific needs and wants. We study patients’ conversations in various settings: with each other on Internet forums, with family members during mealtime conversations, and with scientists during discussions about research findings. In our analysis we focus not so much on the content of the conversations, but on what people do with their talk. We show, for instance, that patients treat the diet as a collective phenomenon rater than an individual matter; that incidental deviations from the diet are not treated as inconsistent with the diet, but as a part of it; and that taste, rather than the health aspect of food, is used to maintain the diet.

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